Hospital Stay 05/31/2011
Got out of the hospital after a five days of vigorous testing for seizure disorders in order to determine what type of seizures I have. Five days of only 2 hours of sleep. Five days of in bed with 27 electric lead attached to your head (which is very itchy). My blood sugar levels were all over the board - very high to very (scary) lows. I passed out several times, just with the diet they allowed me to eat. The radical swings in blood sugar plays so hard on my body. My body just can't handle these types of the drastic swings. In judst five minutes my blood sugar can rise so fast to over 300, the plummate to under 50. I have been to Mayo Clinic several times for testing and they had concluded that I have damage to my vagus nerve and that controls many autonomic functions, throughout the body. Unfortunately, the University of Chicago neurological team was not able to elaborate on that dignosis. They were able to explain to my more about epilopsy and that there would be :footprints" In my brain wave, if I did have epilepsy. So, we did get a piece of information. however, it still remains a mystery as to my condition. After 3 1/2 years of this condition, I am still not sure what this is doing to my body and if this medical condition will continue or progress into something more serious. I have very long episodes and falling provides secondary injuries, mainly on my right side. I will continue to find doctors to help explore this phenomenon. I will still work feverishly to maintain some sense of a normal life, and accepting that I wil have an unusual life, with these complication. I aways try to keep this in focus - there are many people that are much worse off than I am. CommentsAnon 07/14/2011 7:23pm
I don't think you are designed to live a normal life. Excuse me for being so blunt. I just thought you should know that you are a pioneer. Perhaps by studying your condition they will discover things to help others who will come after you. At least you have the rare gift of making something beautiful out of the madness. I will pray for you.
Reply
07/15/2011 1:02am
Thank you for visiting my website and your comments. I don't really feel like a pioneer, but I know that their are others out there that have undiagnosed seizure disorders. I just hope that somehow researchers will help all of us. Thank you for your encouragement!!! There are many days to come that I will read your comment and it will give me a boost!
Reply
Leave a Reply | Eila Grahn
I am an artist that has a seizure disorder and paint what I see in those moments of unconsciousness. ArchivesAugust 2011 Categories |
RSS Feed